Revere technology is used in partnership with biotech and clinical sites to create an international patient (or disease) registry for chronic and genetic based diseases. The registry contains phenotype and genotype and family history data, but is totally removed of all PHI (patient health identifiers) with the goal of advancing research and providing a network for patient advocacy. These registries may be accessed by anyone authorized to participate.

Revere is currently being used to manage the SHaRe Cardiomyopathy Registry…and handling data submission for the participating sites including

The Revere framework may be used by clinics, hospitals and researchers to streamline registry operations across four key areas

  • Data Acquisition and Validation — Upon submittal data is checked for quality and sites are alerted if more information is needed thus streamlining the acquisition and quality process
  • Analysis of Patient Data — Dashboards, reports, and advanced statistics are used for analysis to support research and publication
  • Patient Recruitment — Existing registry sites for disease populations facilitate recruitment for clinical studies

Uses

  • Patient Advocacy — For those struggling with chronic illness, Revere offers a community for patients to follow, share stories and learn of advancements in the treatment and prevention of their disease.
  • Analysis & Research — Utilize patient data stored in Revere to discover superior medications and treatment for a particular disease
  • Publications — Share your academic research to advance the understanding of a particular disease.
  • Improve Standard of Care — Utilize results from the analysis of stored data to improve the current standard of care, from general understanding, to treatment and prevention.
  • Clinical Trials — Search and recruit ideal candidates for clinical trials.

TECHNOLOGY

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Features

  • Rich dashboards and recording use the most advanced commercially available tools
  • Comparative analysis to determine where your treatment protocols (or clinicians) rank vs. alternatives or gold standards
  • Standard XML formats for uploads, allowing any user to create packages for the registry
  • Analyze de-identified data from multiple sites